Hi Everyone

This past week has been a little bit of a trial for me with me winding up in the emergency room and spending the night.  I am just now starting to feel like myself again.  I have epilepsy and had 3 seizures in 3 days in the past week along with a side of aphasia (not able to speak.)  Yes, I have grand mal seizures.  I had not had one in over 18 years and thought I was past that.  This means that I cannot drive for at least 3 months (or possibly longer).  My doctor and I think that with all of the drugs I was taking for my knee surgery, they were fairly strong, that they are leaving my system thus causing seizures.  At least we are hoping so.  

I am feeling a lot better but have not been sewing very much lately but today is the day I intend to get in there and start sewing! Watch out for falling patterns to start appearing soon!

Well, I had my call from Kaiser and I will be starting a new medication, actually the brand name of Dilantin. I get to pick it up tomorrow. If it works and I don’t seize for another 3 months I will be safe to drive again. I have an EEG scheduled for next week and will discuss the results the following week. We both agree that it is probably residue from the pain meds that I was using after my knee surgery. I am feeling a lot better now and should be okay from here on out. Thank you everyone for your good thoughts and prayers, they are truly appreciated.

A little update:

I had an odd day at Kaiser Hospital this morning and a funny story to share. I have epilepsy and had not had a seizure in over 19 years. Well, back at the end of February, I had 3 seizures in 3 days and I wound up in the hospital overnight. Do not remember a single thing about it, nothing at all.

Anyway, I was scheduled for an EEG this morning to find out the cause. I arrived on time, got in there for my EEG. Was all set up with electrodes and whatever else. The tech started and the power went off. Only in the offices, not the hallways. It was off for a few minutes and then came back on. We tried it again. A few minutes later, off goes the power again. It came back on again, was on for about 4-5 minutes and then off again. So, we thought the third time would be the charm. WRONG! It went off as she starting again and then we both decided it was time to probably go ahead and reschedule. But I will have to wait until the power comes back on with the reception area so they can call me! Who knows when that might be! We could hear the doctors joking about calling it a day, and it was only 9 am. The tech and I were laughing about maybe needing an extension cord to do the test out in the hall! 🤣 She said that she is going to put in my chart to make sure they have extra power next time I come in. 🤣 Of course, the test was stopped and I will have to reschedule as we both thought that the test results might be compromised or that the machine may not have recorded all of it. The test takes 45 minutes to complete!

My doctors both think that the medications I was taking early on were too strong, I have a lot of med allergies, and that the half life of some them were leaving my system, even though I was on Dilantin for control. I started off with oxycodone, bad reaction, and went to Norco and Tylenol PM with Naproxen. I am no longer on any pain meds at all and I am just now 3 months out! And tomorrow I will turn another year older. Moral of the story, check with your doctor about any reactions at all to meds and make sure they listen, and report them right away!

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